Protocol No.UW25071
Principal InvestigatorMontgomery, Kathleen (Kitty)
PhaseN/A
Age GroupAdult
Management Group(s) Pediatric Oncology

Title
Pediatric Oncology Clinicians' Experiences Collecting and Managing Multi-Informant Symptom Data

Description
Clinicians’ experiences managing multi-informant symptom data and with decision-making about symptom management

Objective
The purpose of this pilot study is to explore clinicians experiences collecting and synthesizing multi-informant symptom data and making decisions about how to manage children’s symptoms in the ambulatory care setting.

There is no hypothesis given the exploratory descriptive qualitative design. However, the expected outcome is to identify core elements of a triadic (patient, caregiver, clinician) symptom assessment framework to inform symptom management from the perspectives of pediatric oncology clinicians. Because clinicians experiences and perspectives are likely to differ based on their role (provider compared to nurse), we anticipate different insights and suggestions for those 2 groups of clinicians.

Treatment A comprehensive understanding of treatment tolerability relies on consistently incorporating input from three key perspectives (informants): the child, the caregiver, and the clinician. Few studies have explored how clinicians obtain information from patients and their caregivers, navigate areas of agreement and disagreement, and integrate their own perspectives to make decisions about symptom management.

Key Eligibility Potential participants will be identified through department lists at participating institutions. Potentially eligible participants will affirm their eligibility using a brief self-report questionnaire (See Arrow). The questionnaire will be available for clinicians to complete as part of recruitment messaging.

Inclusion criteria:
The clinician must have > 1 year of direct-care experience caring for children, adolescents, or young adults with cancer.
The clinician must care for caring for children, adolescents, or young adults with cancer >50% of the time.
The clinician must practice in an ambulatory (specialty clinic or infusion center) setting >50% of the time.

Applicable Disease Sites
Any Site

Participating Institutions
UW Health Eastpark Medical Center; UW Health University Hospital